Upgrade

Late yesterday evening we were THRILLED to receive a room upgrade. We are still in 7C, but now we have the biggest room in the unit. Of course, our main focus is the care that our son receives, but it was nice to get a little stress off of our backs. Our original room was almost the size of our closet, this one is more like a bedroom. We still have a one-person hospital couch to sleep on, but John is on the way to Walmart right now to get an air mattress. The hospital does not allow cots due to some weird fire hazard code, but a nurse hinted that we could bring in an air mattress as long as it was deflated before morning.
As far as Noah's health today, the drainage is decreasing. Tuesday's numbers were the lowest thus far and yesterday they were the same. The doctors seem pleased with the progress and have taken him off of his last two IV medicine drips (one was to help with the decrease in drainage and the other stimulated his heart to pump). This assures us that we are headed in the right direction. Another benefit of losing the IVs is that we don't have an IV pole following us around. It was complicated going to the playroom because you need one person to pull the wagon and the other to push the IV pole and guide his tubes that are attached. We also get to take him outside and to the cafeteria with us. They really want him to be a "normal boy" and not just a patient.
Having said this, Noah's personality these past two days has not been the same. He really doesn't want to play when we go to the playroom, he hasn't really smiled or talked much, he hasn't eaten and he just wants to lay in bed. We think alot of it is due to some tummy issues. He moans alot and we ask if he is hurting. He says it's his tummy. He hasn't really pooped on his own, just with an enema and not much gas has been passed. We think he is holding it in. He has always been a "picky pooper" and it has to be the right place for him, so we think it's a mental thing. We did request some imaging just to make sure there is not an impaction in the bowels. He should have that later today. Again, the doctors are not too concerned with this. He is getting laxatives to keep things soft and they assured us that he will eat when he is ready, especially when his chest tubes come out. While John is at Walmart, he is getting him a few of his favorite foods to help intice him to eat, but we are still restricted to a no fat diet. So we are making do with our situation and hope that he returns to normal soon.